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Mission & Objectives

Mission and Objectives of the National CMV Foundation

Inform. Advocate. Engage.

At the National CMV Foundation, we work to inform and educate others on specific prevention measures to protect against the risk of CMV infection. Congenital CMV is the most common viral infection that infants are born with in the United States, occurring in about 1 in 150 births. Because CMV is a silent disease – meaning most people who are infected have no signs of symptoms (asymptomatic) – the mother is likely unaware she has CMV during her pregnancy.
 
Statistically, about 30 to 50 percent of women of childbearing age in the U.S. have never been infected with CMV. Of these, about 1 to 4 percent will have their first CMV infection during a pregnancy (primary infection), giving them approximately a 40 percent chance of passing the virus to their unborn child. 
 
Babies born with CMV may have birth defects and/or experience a vast range of developmental disabilities. The National CMV Foundation’s fundamental goal is to empower women of childbearing age to be advocates for their own health, especially during pregnancy. We encourage women to ask questions and be well informed about their health so that together, we can ultimately stop CMV from infecting unborn babies.
 
A non-profit organization, we are dedicated to promoting awareness, providing access to resources and sharing prevention information to eliminate congenital CMV.

Our Vision

To eliminate congenital CMV in the United States for the next generation.

Our Mission

To educate women of childbearing age about congenital CMV.

Key Objectives

Our purpose is to prevent CMV infection in women of childbearing age, by:

  • Empowering women, parents, families and local community networks through grassroots engagement to facilitate conversation and champion the cause
  • Delivering consistent, clear messaging and evidence-based data that aids in prevention, educates the public and increases its understanding of congenital CMV
  • Influencing CMV research priorities regarding CMV prevention, treatment and intervention 
  • Advocating for a CMV vaccine
For further support or assistance, please contact us.
 

Cameron - Arizona

The doctors knew Cameron's problem was viral, but they couldn't pinpoint the virus. Finally, after about 2 days, my placenta lab test came back and it was infected with CMV. I was so relieved that Cameron was going to survive, but I was not ready for the next bombshell. The NICU doctor told us that as a result of is brain damage, Cameron would not be able to “walk, talk or learn."

— Julie, Mother