Blog

Navigating the Costs of Congenital CMV Care: What Families Should Know

Author: Amanda Devereaux RN, Debra Ellis BSN, Gina Liverseed RN and Megan Pesch MD As more states adopt congenital CMV (cCMV) newborn screening, families are gaining access to earlier diagnosis, timely monitoring, and supportive care. But for some, the excitement of having answers is quickly overshadowed by an unexpected challenge: medical costs.

Support the Stop CMV Act

Author: National CMV Foundation Congenital CMV (cCMV) is the most common congenital viral infection in the United States, yet awareness and policy action lag far behind the urgent need. The National CMV Foundation is committed to changing that through our advocacy efforts at the state and national levels—and you can help.

Planning for Another Pregnancy After a Baby With Congenital CMV: What Families Should Know

Author: Isabelle Boucoiran, MD

Statement from the National CMV Foundation on Moderna's mRNA-1647 Phase 3 Trial Results

Author: National CMV Foundation Update on Moderna's CMV Vaccine Trial Results - Science moves forward through both success and failure

Stronger Together: Reflecting on CMV Awareness Month 2025

Author: Megan Pesch, MD

June was CMV Awareness Month, and this year’s theme—Stronger Together—truly came to life! 

Thank you to everyone who made this month powerful and impactful. 

Congenital CMV Awareness Month 2025: Stronger Together

Author: Megan Pesch, MD, MS

Each June, we unite as families, clinicians, researchers, advocates, and community leaders to shine a light on congenital cytomegalovirus (CMV)—the most common infectious cause of birth defects and developmental disabilities in the United States. This year, our theme is "Stronger Together," a powerful reminder that collaboration and connection are essential to advancing awareness, prevention, and support for those impacted by congenital CMV.

​SB 1887 Is Dead—for Now. But the Fight for mRNA Innovation and CCMV Prevention Continues

Author: National CMV Foundation Board of Directors A proposed Bill in the Texas Senate would have banned mRNA vaccines - including the CMV vaccine in development. While this dangerous bill has been stopped—for now—similar proposals may return in Texas or appear in other states. We must remain vigilant.

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

Autism Acceptance and the Case for Newborn CMV Screening

Author: Megan Pesch, MD April is Autism Acceptance Month - At the National CMV Foundation, we advocate for universal newborn screening for CMV not just because of the potential for hearing loss or medical complications—but because early knowledge opens doors. It allows families and providers to work together to support each child’s journey, whatever that may look like.

Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states.