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Legislation

CMV Legislation

Cytomegalovirus, or CMV, is a public health issue and education is necessary. Congenital CMV infection is largely undetected because the majority of affected infants are asymptomatic at birth. Recent evidence suggests that routine screening of newborns could allow infected infants to receive consistent monitoring and treatment if necessary, ultimately increasing his/her chance of optimized developmental care. 

Empowered CMV families from across the nation have teamed up with professionals and politicians in several states in hopes of making a difference with CMV legislation!
 
Addressing CMV education through public policy can provide greater access to resources and funding for CMV awareness. Learn more.
 
Legislation has effectively passed in 6 states, with additional states in progress. Advocate with us! You have the power to call for action. Learn more about how you can help inform public policy.
 
In 2013, the Utah legislature passed the Cytomegalovirus Public Health Initiative. Connecticut, Hawaii, Illinois, Texas and most recently, Tennessee have followed suit. Please click on the state link above to learn more about each approved bill.
 
Idaho, Iowa, Maine, Oregon, and Pennsylvania are currently working through CMV legislation. Will your state be next? Get involved!
 

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As part of the 2016 Congenital CMV Public Health and Policy Conference September 26-27 in Austin, TX, National CMV is working to put together an advocacy toolkit around the following topics:

Building Strategic Relationships: First steps for making political connections and leveraging your local relationships.
If you want your state political leaders to invest in CMV, you may have to invest in them first. Learn about the political process and how to get involved at a local level. This is the first step to passing and implementing CMV legislation in your states. It can be as easy as handing out candy in a parade (with your kids) or handing out brochures. These extra volunteer efforts can win you a lot of good will!

CMV Dream Teams: Who needs to be at the table to pass and implement CMV legislation?
Have you talked to your child’s doctors and specialists about getting involved in CMV advocacy? Have you connected with your State Department of Health? Or any researchers or philanthropists in your state that work on disability issues? If not, learn about strategic partners and ideas for contacting them. Build your team early so you can propose CMV legislation in 2016. Learn about the teams that have led to CMV legislation in multiple states!

CMV Legislation: Now that you’ve done the groundwork, learn about the legislative process.
Between crafting an idea for a specific, new law and the governor signing that idea into a law, there is a lot of hard work and numerous steps. Learn about the political process for a bill becoming a law and how you can start preparing to participate in those steps for your state.

Starting Local: How to ask your city/county/town to recognize June as CMV Awareness Month.
Did you know that your city/town/county Council or Mayor signs proclamations or declarations recognizing awareness months? Learn who to call and get draft proclamations and declarations to share with your local leaders. This is also a great opportunity to get to know your local politicians, who work closely with state legislators! You can also use the proclamation to leverage fundraising and other support in your community.

Are you interested in learning more about CMV advocacy and public policy? If so, please email us at advocacy@nationalcmv.org

Katelyn - Arizona

There is so much I want to do; I just need to figure out how to do it in this body that I cannot necessarily control. But just you wait— you are going to be amazed at what I will be able to accomplish! I won't let CMV get me down.

— Heather, Mother