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Legislation

CMV Legislation

Cytomegalovirus, or CMV, is a public health issue and education is necessary. Congenital CMV infection is largely undetected because the majority of affected infants are asymptomatic at birth. Recent evidence suggests that routine screening of newborns could allow infected infants to receive consistent monitoring and treatment if necessary, ultimately increasing his/her chance of optimized developmental care. 

Empowered CMV families from across the nation have teamed up with professionals and politicians in several states in hopes of making a difference with CMV legislation!
 
For example, did you know that your Council or Mayor signs proclamations or declarations recognizing awareness months? June is CMV Awareness Month and several cities/towns/counties/states have executed these proclamations establishing CMV recognition. Addressing CMV education through public policy serves as a great opportunity to get to know your local politicians and can provide greater access to resources and funding for CMV awareness. Learn more.

Legislation specific to CMV education and/or screening has effectively passed in 9 states, with additional states in progress.

Advocate with us! You have the power to call for action. Learn more about how you can help inform public policy.

CMV-U.S.-Legislation

Summary of Final Legislative Mandates
  • Three states, Illinois, Iowa, and Utah require both education and screening.
  • Taking a cue from Maine, California proposed establishing a commission on cytomegalovirus public education and testing. This commission will identify potential public educational resources to inform pregnant women and women who may become pregnant about CMV, and will identify children born with CMV in order to improve their health and developmental outcomes. AB1801 passed unanimously late August and is now pending the Governor's signature.
Education
  • Eight states require the state to educate the public and professionals about congenital CMV: ColoradoHawaii, Idaho, Illinois, Iowa, Oregon, Texas, Utah.
  • Tennessee requires healthcare providers to educate women of childbearing age.
  • Only Utah has legislation that is accompanied by ongoing funding ($70,000 per year). Idaho has proposed $15,000 per year.
Screening
  • Connecticut, Iowa, and Utah require each newborn that fails the newborn hearing screening to be tested for congenital CMV.
  • Illinois requires that a CMV test be offered to the parents of every child who fails the newborn hearing screening.
Proposed Legislative Mandates
  • Education and Screening: New York and Pennsylvania.
  • Education: Michigan and Minnesota.
  • In 2017, Maine proposed universal newborn CMV screening. While the legislation did not pass, the legislature established a committee to investigate universal CMV screening to provide a recommendation to the state in 2018. Please read the full findings here.

SAVE THE DATE! Join us at the 3rd CMV Public Health & Policy Conference in Burlington, Vermont from September 23-25.

Members from National CMV's leadership team will lead a pre-session on Sunday, September 23rd, and the presentation will include discussions relevant for participants at all stages of legislation: building key relationships with stakeholders to develop an action team, the importance of compromise and alternatives to legislation such as study groups, accountability for action required by legislation or policy changes, and the ongoing work needed after successful legislation passes. Participations will work through an action planning template to determine their state's level of readiness and the necessary steps to begin the legislative process.

Effective legislation requires multiple stakeholders working together in advance of and beyond changing policy.

Are you interested in learning more about CMV advocacy and public policy? If so, please email us at advocacy@nationalcmv.org
There is so much I want to do; I just need to figure out how to do it in this body that I cannot necessarily control. But just you wait— you are going to be amazed at what I will be able to accomplish! I won't let CMV get me down.
— Heather, Mother