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Blog
CMV Mom Hopes to Spread CMV Awareness at Mrs. America Pageant
Posted:
2/8/2023
Category:
Advocacy
,
Awareness
,
Community
,
Parent Perspective
CMV mom Kelsi Gagne is participating in the Mrs. America pageant in April. She plans to use this platform to increase awareness and health literacy of cCMV. Read more about her journey.
Learn More
»
CMV Mom Hopes to Spread CMV Awareness at Mrs. America Pageant
Posted:
2/8/2023
Category:
Advocacy
,
Awareness
,
Community
,
Parent Perspective
CMV mom Kelsi Gagne is participating in the Mrs. America pageant in April. She plans to use this platform to increase awareness and health literacy of cCMV. Read more about her journey.
Learn More
»
Volunteer Spotlight: Shania Hunt
Posted:
2/7/2023
Category:
Advocacy
,
Awareness
,
Fueling Our Mission
,
Parent Perspective
Meet Shania Hunt, our CMV Community Alliance Chair from West Virginia and mother of three.
Learn More
»
Volunteer Spotlight: Taylor Gerding
Posted:
1/24/2023
Category:
Advocacy
,
Awareness
,
Fueling Our Mission
,
Parent Perspective
Meet Taylor Gerding, our CMV Community Alliance Chair from Indiana, a pediatric speech-language pathologist and mom to Ava.
Learn More
»
Q&A with Mama Hu Hears
Posted:
1/10/2023
Category:
Awareness
,
Basic Facts
,
Clinical
,
Recommendations
We had a chance to chat with Michelle Hu. Aud, Pediatric Audiologist. Michelle has turned her love for all things hearing and personal experience with hearing loss into an online presence for educating parents and professionals - Mama Hu Hears. Michelle shares her clinical perspective and experience with congenital CMV related hearing loss.
Learn More
»
Early Career Research Award Update: Dr. Maria Talavera-Barber
Posted:
12/12/2022
Category:
Clinical
,
Fueling Our Mission
Dr. Talavera-Barber, Assistant Professor of Pediatrics at the University of South Dakota Sanford School of Medicine, was a 2019 recipient of a National CMV Foundation Early Career Research Award. In this blog post, she discusses the impact of her research on CMV antibody levels in pregnant women and newborns.
Learn More
»
Update: cCMV Nomination for the Recommended Uniform Screening Panel (RUSP)
Posted:
11/3/2022
Category:
Awareness
,
Basic Facts
,
Clinical
,
Fueling Our Mission
,
Recommendations
The most recent update about our nomination for congenital CMV (cCMV) for inclusion on the Recommended Uniform Screening Panel (RUSP) by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) by Megan Pesch, MD, MS, FAAP, President-Elect National CMV Foundation.
Learn More
»
Volunteer Spotlight: Brandi Hurtubise
Posted:
10/13/2022
Category:
Advocacy
,
Awareness
,
Community
,
Parent
,
Parent Perspective
,
Perspective
Meet Brandi Hurtubise, our Community Chair Alliance from Buffalo, NY. Brandi's daughter Samantha was born with cCMV.
Learn More
»
CMV Vaccine Trial Testimonial
Posted:
9/6/2022
Category:
Awareness
,
Community
,
Parent Perspective
,
Prevention
Hear directly from Meghan, a CMV advocate participating in the Phase 3 Moderna CMVictory trial, as she discusses her why and shares basic facts about enrollment.
Learn More
»
Newborn Screening and Congenital CMV
Author: Patrick Fleming, M.D. Candidate
Posted:
8/17/2022
Category:
Basic Facts
,
Clinical
,
Fueling Our Mission
Early detection of congenital CMV infection in newborns is essential to providing the best possible care. Unfortunately, cCMV is not yet included in universal newborn screening (NBS) programs in the United States. Read more to learn about the history of NBS as it relates to congenital CMV.
Learn More
»
Volunteer Spotlight: Alicia Busso
Posted:
6/7/2022
Category:
Advocacy
,
Awareness
,
Fueling Our Mission
,
Parent Perspective
Meet Alicia Busso, our Community Alliance Chair from Missouri. Alicia is an emergency room physician and mother to two daughters, her oldest born with congenital CMV.
Learn More
»
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