April 2019

Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states. 

Volunteer Spotlight: Rebekah Hall

Author: Rebekah Hall Meet Rebekah Hall. Rebekah is a doctor of clinical psychology, mother of 3, CMV advocate, and much more! We're excited to feature Rebekah in our volunteer spotlight during volunteer month. 

Top 5 Takeaways from CMV 2019

Before we dive into the key discussion points – one underlying theme was ever-present from our perspective – it was and continues to be deeply moving to see how many global professionals are devoting their lives to advancing congenital CMV research. Please know that we see you. And we appreciate you.

National CMV Foundation Nominates Congenital CMV for RUSP Newborn Screening

​National CMV Foundation and the CMV RUSP Nomination Team are excited to announce we have completed the submission of cytomegalovirus to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of 35 core conditions and 26 secondary conditions that all newborns in the US are recommended to be screened for.

CMV Awareness: What Are We Really Measuring?

Author: Kathleen M. Muldoon & Seth D. Dobson Because there is currently no CMV vaccine, it is important that women are informed of behaviors that can help to prevent CMV infection during pregnancy. CMV infection in mothers is preventable. Yet, most women have never heard of the virus. Estimates of the percentage of women that have heard of CMV range from 9-20%, globally.