Volunteer Spotlight: Patty Cutshall-Bailey
What makes the National CMV Foundation's mission powerful for you?
I share in their mission to increase the awareness of CMV and to provide information to prevent and eliminate CMV, and to be an advocate for those who are affected by CMV.
What made you decide to get more involved with the National CMV Foundation, as a Community Alliance Chair?
After my son’s passing, I wanted to be his voice for the other children affected by cCMV.
In your role as CMV Community Alliance Chair, what goals have you set for 2024?
I hope to work with EHDI in Montana and help pass the Stop CMV Act increasing funding to states for hospitals and other healthcare entities to prescribe standards and procedures for the administration of these tests.
What does success look like to you?
Success to me is seeing my family happy, healthy and loved.
What motivates you?
I am motivated by seeing the positive change I bring to people and leaving a better world for my grandchildren.
As a volunteer leader, what advice do you have for people who want to work on CMV advocacy, but don’t know where to start?
We have to be the voice for those who don’t have a voice. If you don’t share your story, we can’t make a difference.
What is your favorite quote?
“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the things which you think you cannot do.”
--Eleanor Roosevelt
What do you like most about living in Montana?
I love being outside in Montana and seeing the beautiful landscape.
You're happiest when?
I am spending time with my husband, children, and grandchildren.
Posted: 4/1/2024
Category: Advocacy, Parent