August 2016

Update: cCMV Nomination for the Recommended Uniform Screening Panel (RUSP)

The most recent update about our nomination for congenital CMV (cCMV) for inclusion on the Recommended Uniform Screening Panel (RUSP) by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) by Megan Pesch, MD, MS, FAAP, President-Elect National CMV Foundation. 

Ultrasound detection of congenital CMV infection

Tens of thousands of babies are born in the United States with congenital CMV every year. For many of these babies, possible signs of CMV infection were likely visible during pregnancy on ultrasound.

How has congenital CMV impacted your life?

Author: Parent Perspective National CMV is helping to produce a display that will communicate the impact of congenital CMV, not just on children, but on their parents and families. We realize that countless families struggle to cope with a congenital CMV diagnosis in their child and will also, unfortunately, experience additional stress and difficulty both inside and outside of the family home. We would like to capture these thoughts and insights from those parents and family members who are willing to participate and to display them anonymously to help educate the public and professionals about the true impact of congenital CMV within the family and home.