August 2018

Resources > Blog > August 2018

Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD

Posted: 8/30/2024
Category: Advocacy

CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states.

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Board Member Spotlight: John Spytek

Author: John Spytek

Posted: 8/14/2018
Category: Community

Meet John Spytek. John co-founded the National CMV Foundation in July 2014, with his wife, on behalf of their daughter, Evelyn Grace. This issue is deeply personal for him and he brings a real sense of tenacity to the group, stemming from his experience in professional sports.

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The Birth Deck: Q&A with Sara Lyon

Author: Kristen Spytek & Sara Lyon

Posted: 8/12/2018
Category: Community, Parent Perspective

It’s OK to feel contradictory emotions simultaneously. Life is dualistic, it is dark and light at once, it is pain and beauty in the same instant. Having gratitude and anger in the same breath is normal and honoring that reality is extraordinary. When we encounter great challenges and allow ourselves to feel everything without judgement or resistance, we can thrive in the aftermath.

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The Ohio CMV Advocacy Project

Posted: 8/2/2018
Category: Advocacy, Awareness, Community, Parent Perspective

In May, National CMV awarded the public health awareness mini grant pilot to The Ohio CMV Advocacy Project. We’d like to share their experience in hopes of inspiring others to begin advocating for CMV awareness, on behalf of and in partnership with National CMV, in their state.

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