December 2015

Resources > Blog > December 2015

Advocating for CMV Newborn Screening Without Legislation

Author: Maggie Kettler, AuD
Posted: 8/30/2024
Category: Advocacy
CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states. 

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Meet the Founders: Sara Doutre

Author: Sara Doutre
Posted: 12/20/2015
Category: Community, Parent Perspective
In July 2010, we found out we were expecting our second baby. Because of a liver complication and an unscheduled c-section with our son Liam in 2009, I sought out a specialist in high-risk pregnancies. In order to receive the best possible care, I drove an hour each way to all of my prenatal visits to be seen at the maternal fetal diagnostic center at the University of Utah. I have a type A personality and was very proactive during my pregnancy. I took the recommended amounts of folic acid to prevent spina bifida. I participated in the recommended screenings for other markers of birth defects. I read every pamphlet provided to me by the doctors office.

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Meet the Founders: Janelle Greenlee

Author: Janelle Greenlee
Posted: 12/2/2015
Category: Community, Parent Perspective
I type this seated in the bedroom of my 12-year old daughter, Riley, who was born with congenital CMV. Riley is lying on top of a shag rug on her floor, looking up into an angled mirror, laughing and mouthing a teething toy. She kicks her legs, almost in a marching motion, and glances occasionally at her TV, which is broadcasting an international soccer match. 

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