February 2017

Perfect: A Journey of CMV, Love, and Resiliency

Author: Patty Cutshall

I wrote the book Perfect: A Journey of CMV, Love, and Resiliency, not only to celebrate what Brandon has done for me and others but to provide hope for those that are newly diagnosed and their caretakers and parents. I hope that this book, read aloud to your kiddo, will make you feel confident and empowered as their advocate and cheerleader. 

2017 CMV Legislation Proposed in Four States

What do Idaho, Iowa, Oregon, and Maine have in common? These states have proposed state CMV legislation for 2017! Thanks to the hard work of sponsors, parents, physicians, and other advocates within these states, CMV legislation with proposed education and/or screening programs will be evaluated during this legislative session in each individual state. So what's in all of these bills? Check out our blog for summaries and links to bill text and updates. 

​Microcephaly 101

Microcephaly has been making headlines over the last year as potential brain malformation connected to women diagnosed with Zika during pregnancy. However, kids are at risk of being born with microcephaly even in areas of the world not hit by the Zika virus. Many of these cases are caused by cytomegalovirus, or CMV. Unlike Zika, which is only being actively transmitted in a small area of the world, CMV exists virtually everywhere. To reduce these cases, we need to increase awareness of CMV: causes, detection, treatments, etc.