February 2023

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

CMV Mom Hopes to Spread CMV Awareness at Mrs. America Pageant

CMV mom Kelsi Gagne is participating in the Mrs. America pageant in April. She plans to use this platform to increase awareness and health literacy of cCMV. Read more about her journey.

Volunteer Spotlight: Shania Hunt

Meet Shania Hunt, our CMV Community Alliance Chair from West Virginia and mother of three.