January 2016

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Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD

Posted: 8/30/2024
Category: Advocacy

CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states.

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Meet the Founders: Annie Culley

Author: Annie Culley

Posted: 1/20/2016
Category: Community, Parent Perspective

I started having symptoms around Valentine’s Day 2012. I had periodical episodes of blindness and eye flashes. I consulted with my Optometrist and he thought that I was maybe having blood clots caused by the birth control I was on. So off I went to my reproductive specialist. He pulled me off of the pills until I was able to finish all of the tests to determine what was wrong. I got progressively more and more sick. My blood pressure went through the roof; I had numbness and tingling in my limbs, horrible headaches, muscle twitches, shortness of breath, aches and just felt totally miserable.

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Meet the Founders: Abigail Wright

Author: Abigail Wright

Posted: 1/4/2016
Category: Community, Parent Perspective

In 2009, I was a newlywed on the way to taking the next big step in life: parenthood. We were totally ready and anxious to start our family. My biological clock was ticking and I read every article that I came across about preparing for pregnancy. I cut out caffeine, took prenatal vitamins and followed all of the other miscellaneous “advice” about gearing up for pregnancy.

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