January 2017

Lurie Children's Hospital: Improving Awareness and the Timely Diagnosis of cCMV in Illinois

Our goal is to be able to provide a rapid diagnosis for those newborns who fail their hearing screens in the newborn nursery, when the hearing loss is attributable to infection with CMV during pregnancy.  Recent research has revealed treatment options for those newborns found to have hearing loss from congenital CMV, to optimize hearing outcomes and neurodevelopment. 

Remembering Aedan

The tremendous loss that we experience -- as parents and as a community -- when a child sucumbs to the effects of congenital CMV cannot by overstated. We see ourselves in each parent's experience and we extend our love and hope to all children born with CMV, much like we would our own. 

Pregnant and diagnosed with CMV?

‚ÄčIf you have just recently been diagnosed with CMV, it can be an extremely confusing, difficult time--we've been there. Just trying to understand what the doctors are telling you can leave you feeling lost and alone sometimes. National CMV is here to help guide you as you begin this journey, providing information and resources to better understand what comes next.