January 2021

Resources > Blog > January 2021

Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD
Posted: 8/30/2024
Category: Advocacy
CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states. 

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Looking Back on 2020: The Year of Pirouettes and Pivots

Posted: 1/31/2021
Category: Community, Fueling Our Mission
Last year. 2020. The year that so much changed. 2020 was an unprecedented year that caused many of us to pause suddenly. We paused to think, shift, regroup, realign, and to quite frankly, survive...As 2020 showed us, we are preparing for the best and yes, we can pivot if needed. 

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Volunteer Spotlight: Andy Jones

Posted: 1/21/2021
Category: Advocacy, Awareness, Community, Fueling Our Mission, Parent Perspective
Meet Andy Jones, our Community Alliance Chair from Alabama. Andy is a lawyer by day and when he's not working, he's advocating for CMV education in memory of his son, Ross, and enjoying nature with his wife and two daughters.

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Recommended Uniform (Newborn) Screening Panel (RUSP) Update

Author: Dr. Megan Pesch
Posted: 1/11/2021
Category: Advocacy, Clinical, Fueling Our Mission
In the fall of 2018, the National CMV Foundation formed a sub-committee including CMV parents, researchers and public health experts, to create a nomination package. The shell of the application was submitted, however additional data was requested by the Committee. Read more to learn about our application's status.

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Announcing Our 2021 President-Elect and Board of Directors

Posted: 1/6/2021
Category: Community, Fueling Our Mission
We are pleased to announce our Officers and Board of Directors for 2021. The Board members represent a wide range of backgrounds and experiences that reflect the diversity of our community. Our leadership team is well-positioned to implement our mission and vision.

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