July 2020

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

Volunteer Spotlight: Samantha Isaacs

Meet Samantha Isaacs, our Community Alliance Chair from north Florida. Samantha is mom to four beautiful kiddos. Follow her blog to learn more about #HankStrong, Sunshine and Shattered Dreams!