March 2017

Resources > Blog > March 2017

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors
Posted: 4/25/2025
Category: Advocacy, Awareness
The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

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Tech exec/CMV dad discusses raising CMV awareness online

Posted: 3/27/2017
Category: Awareness, Parent Perspective
Silicon Valley executive Wade Chambers has not only sat on the board of directors of both the National CMV Foundation and Stop CMV, but he also has twin daughters born with congenital CMV. Wade's professional past in tech has seen stints at Netscape, AOL, Opsware, and Yahoo, but his current role is serving as a Vice President of Engineering for Twitter. We sat down with Wade to get his insights into how the issue of CMV can leverage exising and emerging technologies to raise awareness and encourage advocacy. 

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​International CMV consensus report published in the Lancet

Posted: 3/14/2017
Category: Awareness, Clinical, Community, Fueling Our Mission, Prevention
A consensus report from the International Congenital Cytomegalovirus Recommendations Group was recently published in the UK medical journal, the Lancet. The report, entitled “Congenital cytomegalovirus infection in pregnancy and the neonate: consensus recommendations for prevention, diagnosis, and therapy”, is the result of an international consensus meeting held in Brisbane, Australia at the 5th International Congenital Cytomegalovirus Conference. 

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