September 2021

Resources > Blog > September 2021

Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD

Posted: 8/30/2024
Category: Advocacy

CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states.

Learn More»

Perfect: A Journey of CMV, Love, and Resiliency

Author: Patty Cutshall

Posted: 9/13/2021
Category: Advocacy, Awareness, Community, Parent Perspective

I wrote the book Perfect: A Journey of CMV, Love, and Resiliency, not only to celebrate what Brandon has done for me and others but to provide hope for those that are newly diagnosed and their caretakers and parents. I hope that this book, read aloud to your kiddo, will make you feel confident and empowered as their advocate and cheerleader.

Learn More»