Mother and Child smiling while laying on a bed

Blog

Board Member Spotlight: Megan Pesch, MD

Meet Dr. Megan Pesch. Dr. Pesch is a developmental and behavioral pediatrician at CS Mott Children's Hospital in Ann Arbor, MI, and she is mom to three daughters, her youngest born with congenital CMV.

Meet the Founders: Annie Culley

Author: Annie Culley I started having symptoms around Valentine’s Day 2012. I had periodical episodes of blindness and eye flashes. I consulted with my Optometrist and he thought that I was maybe having blood clots caused by the birth control I was on. So off I went to my reproductive specialist. He pulled me off of the pills until I was able to finish all of the tests to determine what was wrong. I got progressively more and more sick. My blood pressure went through the roof; I had numbness and tingling in my limbs, horrible headaches, muscle twitches, shortness of breath, aches and just felt totally miserable.

Meet the Founders: Abigail Wright

Author: Abigail Wright In 2009, I was a newlywed on the way to taking the next big step in life: parenthood. We were totally ready and anxious to start our family. My biological clock was ticking and I read every article that I came across about preparing for pregnancy. I cut out caffeine, took prenatal vitamins and followed all of the other miscellaneous “advice” about gearing up for pregnancy.

Meet the Founders: Sara Doutre

Author: Sara Doutre In July 2010, we found out we were expecting our second baby. Because of a liver complication and an unscheduled c-section with our son Liam in 2009, I sought out a specialist in high-risk pregnancies. In order to receive the best possible care, I drove an hour each way to all of my prenatal visits to be seen at the maternal fetal diagnostic center at the University of Utah. I have a type A personality and was very proactive during my pregnancy. I took the recommended amounts of folic acid to prevent spina bifida. I participated in the recommended screenings for other markers of birth defects. I read every pamphlet provided to me by the doctors office.

Meet the Founders: Janelle Greenlee

Author: Janelle Greenlee I type this seated in the bedroom of my 12-year old daughter, Riley, who was born with congenital CMV. Riley is lying on top of a shag rug on her floor, looking up into an angled mirror, laughing and mouthing a teething toy. She kicks her legs, almost in a marching motion, and glances occasionally at her TV, which is broadcasting an international soccer match. 

Meet the Founders: Farah Armstrong

Author: Farah Armstrong When I think back to the moment I first heard about Cytomegalovirus, I still get chills down my spine. It was January 31, 2014 and my beautiful baby girl had only been born for one hour. I was still recovering from the delivery when the neonatologist came into the room to report the worst news I have received in my lifetime.