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Blog
Volunteer Spotlight: Alicia Busso
Posted:
6/7/2022
Category:
Advocacy
,
Awareness
,
Fueling Our Mission
,
Parent Perspective
Meet Alicia Busso, our Community Alliance Chair from Missouri. Alicia is an emergency room physician and mother to two daughters, her oldest born with congenital CMV.
Learn More
»
Share your photos and videos at the CMV Conference
Posted:
3/29/2016
Category:
Community
,
Parent Perspective
Want to show off your child and tell your story at this year’s CMV Public Health and Policy Conference?
The National CMV Foundation is seeking photos of children affected by congenital CMV for display at the upcoming conference this September in Austin, Texas. Conference organizers are also requesting video submissions from parents discussing their experience with CMV and how it has affected their life.
Learn More
»
Attorney and advocate, Sara Beth Myers, discusses Tennessee's CMV legislation
Posted:
3/22/2016
Category:
Advocacy
Tennessee recently became the sixth state in the nation to pass CMV legislation in its second year after introduction. Tennessee Senate Bill 2097/House Bill 2397 received
unanimous supporting votes in both the House and the Senate and faced no opposition from outside groups in its second year. But how? And why?
We spoke with Sara Beth Myers, attorney and founding President of AWAKE - Advocates for Women's And Kids' Equality, who spearheaded the Tennessee effort to learn more about the process and their unique approach to this year’s successful legislation.
Learn More
»
2016 CMV Public Health & Policy Conference
Posted:
3/7/2016
Category:
Advocacy
,
Community
Come join the National CMV Foundation at the second CMV Public Health & Policy Conference on September 26th and 27th in Austin, Texas as we present the latest research on diagnosis and treatment of CMV, delineate prevention efforts, provide information about early intervention options, and disseminate family support resources.
Learn More
»
The Real Story of Congenital CMV
Posted:
2/25/2016
Category:
Awareness
,
Community
,
Parent Perspective
Imagine giving birth to a baby and finding out that your baby was exposed to a dangerous virus during your pregnancy.
This virus, cytomegalovirus (CMV), could have a questionable impact on your child's development and prognosis and you have no outlook as to what your child's life and medical situation would be.
Learn More
»
CALL TO ACTION - Senate Appropriations Subcommittee discussion of CMV
Posted:
2/10/2016
Category:
Advocacy
On Thursday February 11th, the Labor, Health and Human Services, Education, and Related Agencies Subcommittee of the United State Senate Appropriations Committee will hold a hearing entitled "Emerging Health Threats and the Zika Supplemental Funding Request". Testifying at this hearing will be Dr. Thomas R. Frieden, Director of the Centers for Disease Control and Prevention (CDC), and Dr. Anthony Fauci, Director of the National Institute of Allergy and Infectious Diseases (NIAID).
Learn More
»
This week: Tennessee committee hearings for CMV bill
Posted:
2/8/2016
Category:
Advocacy
Recently introduced CMV legislation in the state of Tennessee is going to be discussed in two state committee hearings on Tuesday and Wednesday of this week. We need your help! We are asking that all Tennessee families and supporters please make the following phone calls this week to support this committee process and to help this CMV awareness bill advance in the statehouse.
Learn More
»
Help support Iowa CMV legislation
Posted:
2/4/2016
Category:
Advocacy
We are excited to announce the introduction of CMV legislation in the state of Iowa and are asking for residents of Iowa to please help us with this effort. The CMV Education and Screening Bill was inspired by Pippa Devereaux, who was born with congenital CMV, and is being supported by her mother, Amanda, from Des Moines. We ask that parents, professionals, and supporters take the time to email each of the members of the Human Resources Committee and state your support for this CMV Education and Screening Bill that is currently in the Human Resources Committee.
Learn More
»
The Brendan B. McGinnis Fund at the National CMV Foundation
Posted:
2/1/2016
Category:
Community
,
Fueling Our Mission
The National CMV Foundation is pleased to announce the establishment of the Brendan B. McGinnis Fund, made possible by a nearly $20,000 donation from the former Brendan B. McGinnis Congenital CMV Foundation. The fund will help to sponsor family scholarships and a family gathering at the CMV Public Health and Policy Conference in Austin, Texas on September 26
th
and 27
th
. The National CMV Foundation also hopes to continue the tradition of an award for researchers dedicated to advancing CMV vaccine development.
Donors interested in supporting the Brendan B. McGinnis fund can make their donation “in honor of” Brendan B. McGinnis at:
https://www.nationalcmv.org/get-involved/donate.aspx
.
Learn More
»
Meet the Founders: Annie Culley
Author: Annie Culley
Posted:
1/20/2016
Category:
Community
,
Parent Perspective
I started having symptoms around Valentine’s Day 2012. I had periodical episodes of blindness and eye flashes. I consulted with my Optometrist and he thought that I was maybe having blood clots caused by the birth control I was on. So off I went to my reproductive specialist. He pulled me off of the pills until I was able to finish all of the tests to determine what was wrong. I got progressively more and more sick. My blood pressure went through the roof; I had numbness and tingling in my limbs, horrible headaches, muscle twitches, shortness of breath, aches and just felt totally miserable.
Learn More
»
Meet the Founders: Abigail Wright
Author: Abigail Wright
Posted:
1/4/2016
Category:
Community
,
Parent Perspective
In 2009, I was a newlywed on the way to taking the next big step in life: parenthood. We were totally ready and anxious to start our family. My biological clock was ticking and I read every article that I came across about preparing for pregnancy. I cut out caffeine, took prenatal vitamins and followed all of the other miscellaneous “advice” about gearing up for pregnancy.
Learn More
»
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