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CCMV Public Health and Policy Conference Series: CCMV and Autism Spectrum Disorder

Author: Dr. Megan Pesch In October of 2023, researchers, clinicians, and families from around the world gathered in Salt Lake City, Utah for the Congenital CMV Public Health and Policy Conference. It was an exciting three-and-a-half days-- jam-packed with presentations about the latest clinical practices and research findings, as well as congenital CMV families sharing their experiences and lessons learned from their own journeys. This series highlights some of the presenters and their work featured at the conference, to share with our NCMVF community. In this installment, we learn about the relationship between congenital CMV and Autism Spectrum Disorder.  

Acquired CMV: Risks and Treatments

Acquired CMV infection is when a person is infected with CMV after birth, whether during childhood or adulthood. Acquired CMV is actually very common with anywhere from 50-80% of adults in the United States having been infected with CMV by the time they reach 40 years old. However, acquired CMV can cause serious problems for people who are immunocompromised and those who have weakened immune systems.

Acquired CMV: Intro and Symptoms

If you have been affected by congenital CMV, it’s very possible that someone else in your life has also been affected by CMV, but in a very different way. It could be your grandmother who suffered from CMV complications during chemotherapy treatment to fight cancer. Or maybe a family friend who contracted CMV after a successful transplant surgery. 

New conception recommendations for Zika and CMV

The Centers for Disease Control and Prevention (CDC) has issued new recommendations for women hoping to get pregnant after possible exposure to Zika virus. Most people infected with Zika virus won’t even know that they have the disease because they won’t have symptoms. Like Zika virus, most women who contract cytomegalovirus (CMV) will not experience any symptoms and may not even know that they have been infected. 

Share your CMV story with National CMV

Perhaps no one is able to give greater insight into living with congenital CMV than the parents of children and adults born with CMV. According to the CDC, each year 1 in 150 children is born with CMV and 1 in 750 will experience disability because of CMV. These high statistics reinforce CMV as a public health concern, but we need to show the world our thousands of children. We need to be the visual, vocal, visceral standard bearers of congenital CMV.

CMV Awareness Flyers

Help us raise awareness of CMV--share, post, and print our awareness flyers and help educate pregnant women, practitioners, and the public about CMV. Post and distribute flyers in public meeting places, such as OB/GYN offices, pediatrician offices, family practice offices, daycares, preschools, college health centers--anywhere where at-risk populations congregate, work, or socialize. National CMV awareness flyers are now available in over 30 languages. 

Back to the basics with CMV expert, Dr. Gail Demmler-Harrison

New to the issue of cytomegalovirus? Fancy yourself an expert on all things CMV? Wherever you are in your experience (or lack thereof) with CMV, it's always important to freshen up on the basics from time to time, especially as medical research may develop and policies may change. We recently had the opportunity to catch up with longtime CMV expert and advocate Dr. Gail Demmler-Harrison from Baylor College of Medicine and Texas Children's Hospital. For over 30 years, "Dr. Gail" has become the de facto expert on infant diagnosis of CMV, as well as treatment and development of children born with congenital CMV while spearheading the National Congenital CMV Disease Research Clinic and Registry

Share your photos and videos at the CMV Conference

‚ÄčWant to show off your child and tell your story at this year’s CMV Public Health and Policy Conference? The National CMV Foundation is seeking photos of children affected by congenital CMV for display at the upcoming conference this September in Austin, Texas. Conference organizers are also requesting video submissions from parents discussing their experience with CMV and how it has affected their life. 

Attorney and advocate, Sara Beth Myers, discusses Tennessee's CMV legislation

Tennessee recently became the sixth state in the nation to pass CMV legislation in its second year after introduction. Tennessee Senate Bill 2097/House Bill 2397 received unanimous supporting votes in both the House and the Senate and faced no opposition from outside groups in its second year. But how? And why? We spoke with Sara Beth Myers, attorney and founding President of AWAKE - Advocates for Women's And Kids' Equality, who spearheaded the Tennessee effort to learn more about the process and their unique approach to this year’s successful legislation. 

2016 CMV Public Health & Policy Conference

Come join the National CMV Foundation at the second CMV Public Health & Policy Conference on September 26th and 27th in Austin, Texas as we present the latest research on diagnosis and treatment of CMV, delineate prevention efforts, provide information about early intervention options, and disseminate family support resources. 

The Real Story of Congenital CMV

Imagine giving birth to a baby and finding out that your baby was exposed to a dangerous virus during your pregnancy. This virus, cytomegalovirus (CMV), could have a questionable impact on your child's development and prognosis and you have no outlook as to what your child's life and medical situation would be.