Mother and Child smiling while laying on a bed

Blog

Late-Onset Hearing Loss Awareness

Author: Diana Hanson, MS CCC-A Late Onset Hearing Loss (LOHL) is hearing loss that follows a passed newborn hearing screening up until age 5-6 years. LOHL Awareness Week was established in May 2021 to shine a spotlight on a population of young children who are often undiagnosed until later in childhood.

Volunteer Spotlight: Shayne Gaffney

Meet Shayne Gaffney, our Community Alliance Chair from New Hampshire. Shayne runs GC Coaching and is a cycling coach, and when he's not working, he's advocating for CMV screening in New England and hosting several National CMV podcasts! Shayne is father to two young children, his daughter born with congenital CMV.

Together We Stand, United We March On

We are so proud of what we've collectively built over the years, and we want to continue to strengthen and expand this work. As the African Proverb states, "If you want to go quickly, go alone. If you want to go far, go together."

Volunteer Spotlight: Lisa Eickel

Meet Lisa Eickel, our Community Alliance Chair from Virginia! Lisa is a busy mom to three boys and a speech language pathologist. 

Early Career Research Award Recipient: Dr. Pesch

Dr. Megan Pesch is a Developmental and Behavioral Pediatrician at the University of Michigan and one of our 2020 early career CMV research award recipients! Dr. Pesch's research will investigate social-emotional and behavioral concerns in children with congenital CMV.

Early Career Research Award Recipient: Dr. Kakkar

Dr. Fatima Kakkar is a pediatric infectious disease specialist and clinician-researcher at CHU Sainte-Justine in Montreal and her research will focus on determining the best newborn screening test for the province of Quebec. She is one of our 2020 early career CMV research award recipients! 

Early Career Research Award Recipient: Jennifer Jenks

Jennifer Jenks is an MD PhD student in the Medical Scientist Training Program at Duke University School of Medicine and is one of our 2020 early career CMV research award recipients! Jennifer's research investigates the rational design of CMV vaccines.

Volunteer Spotlight: Samantha Isaacs

Meet Samantha Isaacs, our Community Alliance Chair from north Florida. Samantha is mom to four beautiful kiddos. Follow her blog to learn more about #HankStrong, Sunshine and Shattered Dreams!

Volunteer Spotlight: Megan Nix

Meet Megan Nix, our Community Alliance Chair from Denver, Colorado. Megan is mom to three girls and a nonfiction writer, we are lucky to have her in our corner!

Volunteer Spotlight: Erica Steadman

Meet Erica Steadman from Tinley Park, Illinois. Erica has three daughters and when she's not advocating for CMV, she's leading marketing efforts for American Sale Corporation.

Volunteer Spotlight: Ashley Maes

Meet Ashley Maes from Clovis, California. Ashley advocates for CMV in honor of her daughter, Ila.