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Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states. 

CCMV Public Health and Policy Conference Series: Pediatric Vestibular Dysfunction

Author: Dr. Megan Pesch In October of 2023, researchers, clinicians and families from around the world gathered in Salt Lake City, Utah for the Congenital CMV Public Health and Policy Conference. It was an exciting three-and-a-half days-- jam packed with presentations about the latest clinical practices and research findings, as well as congenital CMV families sharing their experiences and lessons learned from their own journeys. This series highlights some of the presenters and their work featured at the conference, to share with our NCMVF community. In this installment, Dr. Karen Hendrick and Margot Gray answer questions about pediatric vestibular dysfunction.

CCMV Public Health and Policy Conference Series: Standardized Case Definitions for Congenital CMV

Author: Dr. Megan Pesch In October of 2023, researchers, clinicians and families from around the world gathered in Salt Lake City, Utah for the Congenital CMV Public Health and Policy Conference. It was an exciting three-and-a-half days-- jam packed with presentations about the latest clinical practices and research findings, as well as congenital CMV families sharing their experiences and lessons learned from their own journeys. This series highlights some of the presenters and their work featured at the conference, to share with our NCMVF community. In this installment, we discuss the creation of standard case definitions for congenital CMV.  

Reflecting on Two Years of Progress: A Farewell Message from the Immediate Past President of the National CMV Foundation

Author: Dr. Megan Pesch National CMV Foundation immediate past president, Dr. Megan Pesch, reflects on the last two years of progress at the Foundation. 

CMV Vaccine Workshop Overview

Author: Hannah Hopkins Goldberg National CMV Foundation was proud to be a co-organizer of the recent CMV Vaccine Development Workshop, which took place last month. Learn more about this amazing meeting from National CMV Foundation intern Hannah Hopkins Goldberg. 

2022 Early Career Research Awards

In 2022, the National CMV Foundation funded two Early Career Research Awards to support innovative research related to maternal or congenital CMV infections. Read more about the funded projects here!

NCHAM and National CMV Foundation Partnership

Learn more about National CMV Foundation's partnership with the National Center for Hearing Assessment and Management from the Director of Quality Improvement, Alyson Ward.

CMV Mom Hopes to Spread CMV Awareness at Mrs. America Pageant

CMV mom Kelsi Gagne is participating in the Mrs. America pageant in April. She plans to use this platform to increase awareness and health literacy of cCMV. Read more about her journey.

Volunteer Spotlight: Shania Hunt

Meet Shania Hunt, our CMV Community Alliance Chair from West Virginia and mother of three.

Volunteer Spotlight: Taylor Gerding

Meet Taylor Gerding, our CMV Community Alliance Chair from Indiana, a pediatric speech-language pathologist and mom to Ava.

Q&A with Mama Hu Hears

We had a chance to chat with Michelle Hu. Aud, Pediatric Audiologist. Michelle has turned her love for all things hearing and personal experience with hearing loss into an online presence for educating parents and professionals - Mama Hu Hears. Michelle shares her clinical perspective and experience with congenital CMV related hearing loss.