Mother and Child smiling while laying on a bed

Blog

Resources > Blog

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors
Posted: 4/25/2025
Category: Advocacy, Awareness
The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

Learn More»

Volunteer Spotlight: Taylor Gerding

Posted: 1/24/2023
Category: Advocacy, Awareness, Fueling Our Mission, Parent Perspective
Meet Taylor Gerding, our CMV Community Alliance Chair from Indiana, a pediatric speech-language pathologist and mom to Ava.

Learn More»

Q&A with Mama Hu Hears

Posted: 1/10/2023
Category: Awareness, Basic Facts, Clinical, Recommendations
We had a chance to chat with Michelle Hu. Aud, Pediatric Audiologist. Michelle has turned her love for all things hearing and personal experience with hearing loss into an online presence for educating parents and professionals - Mama Hu Hears. Michelle shares her clinical perspective and experience with congenital CMV related hearing loss.

Learn More»

Early Career Research Award Update: Dr. Maria Talavera-Barber

Posted: 12/12/2022
Category: Clinical, Fueling Our Mission
Dr. Talavera-Barber, Assistant Professor of Pediatrics at the University of South Dakota Sanford School of Medicine, was a 2019 recipient of a National CMV Foundation Early Career Research Award. In this blog post, she discusses the impact of her research on CMV antibody levels in pregnant women and newborns.

Learn More»

Update: cCMV Nomination for the Recommended Uniform Screening Panel (RUSP)

Posted: 11/3/2022
Category: Awareness, Basic Facts, Clinical, Fueling Our Mission, Recommendations
The most recent update about our nomination for congenital CMV (cCMV) for inclusion on the Recommended Uniform Screening Panel (RUSP) by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) by Megan Pesch, MD, MS, FAAP, President-Elect National CMV Foundation. 

Learn More»

Volunteer Spotlight: Brandi Hurtubise

Posted: 10/13/2022
Category: Advocacy, Awareness, Community, Parent, Parent Perspective, Perspective
Meet Brandi Hurtubise, our Community Chair Alliance from Buffalo, NY. Brandi's daughter Samantha was born with cCMV. 

Learn More»

CMV Vaccine Trial Testimonial

Posted: 9/6/2022
Category: Awareness, Community, Parent Perspective, Prevention
Hear directly from Meghan, a CMV advocate participating in the Phase 3 Moderna CMVictory trial, as she discusses her why and shares basic facts about enrollment.

Learn More»

Newborn Screening and Congenital CMV

Author: Patrick Fleming, M.D. Candidate
Posted: 8/17/2022
Category: Basic Facts, Clinical, Fueling Our Mission
Early detection of congenital CMV infection in newborns is essential to providing the best possible care. Unfortunately, cCMV is not yet included in universal newborn screening (NBS) programs in the United States. Read more to learn about the history of NBS as it relates to congenital CMV.

Learn More»

Volunteer Spotlight: Alicia Busso

Posted: 6/7/2022
Category: Advocacy, Awareness, Fueling Our Mission, Parent Perspective
Meet Alicia Busso, our Community Alliance Chair from Missouri. Alicia is an emergency room physician and mother to two daughters, her oldest born with congenital CMV.
 

Learn More»

Late-Onset Hearing Loss Awareness

Author: Diana Hanson, MS CCC-A
Posted: 5/1/2022
Category: Advocacy, Awareness, Clinical, Community
Late Onset Hearing Loss (LOHL) is hearing loss that follows a passed newborn hearing screening up until age 5-6 years. LOHL Awareness Week was established in May 2021 to shine a spotlight on a population of young children who are often undiagnosed until later in childhood.

Learn More»

Volunteer Spotlight: Shelly Zappas

Posted: 4/13/2022
Category: Advocacy, Awareness, Community, Parent Perspective
Meet Shelly Zappas, our Community Alliance Chair from Los Angeles, California. Shelly is a family nurse practitioner and currently, a professor and the program director for the MSN-FNP program at the University of Southern California. She has two children, one born with congenital CMV.

Learn More»