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Blog

Late-Onset Hearing Loss Awareness

Author: Diana Hanson, MS CCC-A Late Onset Hearing Loss (LOHL) is hearing loss that follows a passed newborn hearing screening up until age 5-6 years. LOHL Awareness Week was established in May 2021 to shine a spotlight on a population of young children who are often undiagnosed until later in childhood.

Volunteer Spotlight: Lindsay Lawless

Meet Lindsay Lawless from Abington, Pennsylvania. Lindsay advocates for CMV in memory of her daughter, Wynne, and in honor of her two other children.

Congenital CMV Evaluation and Treatment and the COVID-19 Pandemic

In efforts to help limit the spread of SARS-CoV2 and minimize the risk of COVID-19 to patients, providers and staff, many governing bodies are categorizing essential and non-essential clinical guidelines to help with prioritization and planning. While maintaining and adjusting safety procedures that work best for each institution, state agency, and community is paramount, neonatal cytomegalovirus (CMV) screening, evaluation and treatment should continue to be performed per routine institutional protocols and considered essential patient care.

Volunteer Spotlight: Karri Grecco

Meet Karri Grecco. Karri is a full-time mother of three from Bel Air, Maryland. Her decade+ experience in caring for a child with CMV and proximity to DC make Karri a terrific advocate for the community!

Quarantined with Toddlers? COVID-19 is not the only virus to be aware of

With most states under specific quarantine directives, many are staying home managing young children and their individual needs, loads of school work, a mountain of household tasks, professional career demands and the emotional or physical strain of caring for loved ones during this time of great uncertainty. While COVID-19 is top of mind, pregnant women should also practice CMV prevention tips to reduce the risk of transmission of the most infectious cause of birth defects in the United States.

One Child's Journey Towards Independent Mobility

Dr. Kathleen Muldoon is an Associate Professor of Anatomy at Midwestern University in Glendale, AZ, Chair of National CMV Foundation's Scientific Advisory Committee, and mom of three.

EHDI Conference Recap

Author: Amanda Devereaux The 2020 Early Hearing Detection & Intervention (EHDI) meeting was held in Kansas City, MO, March 8-March 10th. The goal of the annual EHDI Meeting is to enhance the implementation of comprehensive state-based Early Hearing Detection and Intervention (EHDI) programs, and there were several key observations relevant to our CMV community from this year's meeting.

Coronavirus (COVID-19) Statement

COVID-19, the novel coronavirus outbreak currently elevated to global pandemic status, is of particular concern for the elderly, immunocompromised, and those with underlying health issues. The National CMV Foundation's Scientific Advisory Committee is actively monitoring the situation in regards to its impact on children and pregnant women, as data continues to evolve.

Board Member Spotlight: Megan Pesch, MD

Meet Dr. Megan Pesch. Dr. Pesch is a developmental and behavioral pediatrician at CS Mott Children's Hospital in Ann Arbor, MI, and she is mom to three daughters, her youngest born with congenital CMV.

Board Member Spotlight: Sallie Permar, MD, PhD

Meet Dr. Sallie Permar. Dr. Permar is a physician scientist focusing on the prevention and treatment of neonatal viral infections. She leads a research laboratory at Duke investigating immune protection against vertical transmission of neonatal viral pathogens, namely HIV and cytomegalovirus (CMV), using human cohorts and nonhuman primate models.

Volunteer Spotlight: Cara Gluck

Meet Cara Gluck. Public health professional and CMV mom from Lawton, OK. Cara's passion and perspective combine to increase CMV awareness in her home state and beyond!