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Blog

Looking Back on 2020: The Year of Pirouettes and Pivots

Last year. 2020. The year that so much changed. 2020 was an unprecedented year that caused many of us to pause suddenly. We paused to think, shift, regroup, realign, and to quite frankly, survive...As 2020 showed us, we are preparing for the best and yes, we can pivot if needed. 

National CMV Foundation Nominates Congenital CMV for RUSP Newborn Screening

‚ÄčNational CMV Foundation and the CMV RUSP Nomination Team are excited to announce we have completed the submission of cytomegalovirus to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of 35 core conditions and 26 secondary conditions that all newborns in the US are recommended to be screened for.

CMV Awareness: What Are We Really Measuring?

Author: Kathleen M. Muldoon & Seth D. Dobson Because there is currently no CMV vaccine, it is important that women are informed of behaviors that can help to prevent CMV infection during pregnancy. CMV infection in mothers is preventable. Yet, most women have never heard of the virus. Estimates of the percentage of women that have heard of CMV range from 9-20%, globally.

2019 TCS New York City Marathon

Author: Kristel Jacobson Run the 2019 TCS New York City Marathon with Compete 4 CMV!

Board Member Spotlight: Zack Rigoni

Author: Zachary Rigoni Meet Zack Rigoni. Zack is an investment banker in NYC focused on upstream oil & gas companies, and he brings dynamic energy and a new perspective to the pursuit of achieving cCMV awareness in the United States. Zack is most happy when spending time with his family, including two young children. 

2018 Early Career Research Award Recipient

The National CMV Foundation’s mission includes supporting relevant, timely and innovative research that will assist the foundation in meeting its goals to eliminate the harmful effects of maternal and congenital cytomegalovirus (CMV) infection.

Compete 4 CMV Spotlight: Jeff Rich

Meet Jeff Rich. A longtime friend of founders, Kristen and John Spytek. Father of three. And, soon-to-be Compete 4 CMV - NYC Marathon finisher!

Board Member Spotlight: Albert Park

Author: Dr. Albert Park Meet Dr. Albert Park. Dr. Park is Chief of Pediatric Otolaryngology at the University of Utah and principle investigator for the ValEAR study. His focus is in pediatric hearing loss, identifying a great number of babies with congenital CMV. 

Compete 4 CMV Spotlight: Pete Zoob

Meet Pete Zoob. A longtime friend of founders, Kristen and John Spytek, and soon-to-be eight-time marathoner! We're grateful he's making #8 a Compete 4 CMV race.

Raising Awareness of Congenital CMV in New Jersey

Meet 2018 Public Health Awareness Mini Grant Recipients Allison Goldschlag-Reinking and Laurie Navin of The Central Jersey Family Health Consortium, and learn more about their project to implement a comprehensive educational program about congenital CMV in their region.

What I Took Away from the CMV Public Health & Policy Conference

Author: Kristen H Spytek Our community of parents, advocates, early interventionists, state health employees, clinicians, researchers, scientists, and stakeholders, were well-represented in Burlington last week, and what was extremely encouraging to me, is that both individually and together, we all continue to operate on full cylinders at the very epicenter of what we’re each trying to ultimately do – save babies and prevent birth defects due to congenital CMV.