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Advocating for Newborn CMV Screening through Hospital-Based Initiatives

Author: Maggie Kettler, AuD CMV newborn screening has increased tremendously in the past decade, with many states implementing the screening through legislative efforts. However, CMV screening legislation is not a realistic avenue in all states. In this blog post, we hear from Maggie Kettler, AuD, who has helped to lead successful efforts to increase CMV newborn screening in her home state of Ohio. In this post she discusses successes, challenges, and advice she has for advocates in other states. 

One Child's Journey Towards Independent Mobility

Dr. Kathleen Muldoon is an Associate Professor of Anatomy at Midwestern University in Glendale, AZ, Chair of National CMV Foundation's Scientific Advisory Committee, and mom of three.

EHDI Conference Recap

Author: Amanda Devereaux The 2020 Early Hearing Detection & Intervention (EHDI) meeting was held in Kansas City, MO, March 8-March 10th. The goal of the annual EHDI Meeting is to enhance the implementation of comprehensive state-based Early Hearing Detection and Intervention (EHDI) programs, and there were several key observations relevant to our CMV community from this year's meeting.

Coronavirus (COVID-19) Statement

COVID-19, the novel coronavirus outbreak currently elevated to global pandemic status, is of particular concern for the elderly, immunocompromised, and those with underlying health issues. The National CMV Foundation's Scientific Advisory Committee is actively monitoring the situation in regards to its impact on children and pregnant women, as data continues to evolve.

Board Member Spotlight: Megan Pesch, MD

Meet Dr. Megan Pesch. Dr. Pesch is a developmental and behavioral pediatrician at CS Mott Children's Hospital in Ann Arbor, MI, and she is mom to three daughters, her youngest born with congenital CMV.

Board Member Spotlight: Sallie Permar, MD, PhD

Meet Dr. Sallie Permar. Dr. Permar is a physician scientist focusing on the prevention and treatment of neonatal viral infections. She leads a research laboratory at Duke investigating immune protection against vertical transmission of neonatal viral pathogens, namely HIV and cytomegalovirus (CMV), using human cohorts and nonhuman primate models.

Volunteer Spotlight: Cara Gluck

Meet Cara Gluck. Public health professional and CMV mom from Lawton, OK. Cara's passion and perspective combine to increase CMV awareness in her home state and beyond!

Compete 4 CMV Spotlight: Matt Rowe

Meet Matt Rowe. Dad to CMV kiddo, Nadia, accomplished runner, and soon-to-be 7-time marathoner! We're proud he's racing for #CMVawareness at the NYC Marathon on 11/3!

Lurie Children's Hospital: Improving Awareness and the Timely Diagnosis of cCMV in Illinois

Our goal is to be able to provide a rapid diagnosis for those newborns who fail their hearing screens in the newborn nursery, when the hearing loss is attributable to infection with CMV during pregnancy.  Recent research has revealed treatment options for those newborns found to have hearing loss from congenital CMV, to optimize hearing outcomes and neurodevelopment. 

The CMVirus Pledge

September is Newborn Screening Month. In April 2019, the National CMV Foundation and the CMV RUSP Nomination Team announced the submission of CMV for inclusion on the Recommended Uniform Screening Panel (RUSP). 

CMVIRUS: Spread the word, not the virus

National CMV Foundation announces the launch of our new public health campaign: CMVIRUS – Spread the Word, Not the Virus.