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Blog

Volunteer Spotlight: Megan Nix

Meet Megan Nix, our Community Alliance Chair from Denver, Colorado. Megan is mom to three girls and a nonfiction writer, we are lucky to have her in our corner!

Volunteer Spotlight: Erica Steadman

Meet Erica Steadman from Tinley Park, Illinois. Erica has three daughters and when she's not advocating for CMV, she's leading marketing efforts for American Sale Corporation.

Volunteer Spotlight: Ashley Maes

Meet Ashley Maes from Clovis, California. Ashley advocates for CMV in honor of her daughter, Ila.

Volunteer Spotlight: Lindsay Lawless

Meet Lindsay Lawless from Abington, Pennsylvania. Lindsay advocates for CMV in memory of her daughter, Wynne, and in honor of her two other children.

Volunteer Spotlight: Karri Grecco

Meet Karri Grecco. Karri is a full-time mother of three from Bel Air, Maryland. Her decade+ experience in caring for a child with CMV and proximity to DC make Karri a terrific advocate for the community!

Quarantined with Toddlers? COVID-19 is not the only virus to be aware of

With most states under specific quarantine directives, many are staying home managing young children and their individual needs, loads of school work, a mountain of household tasks, professional career demands and the emotional or physical strain of caring for loved ones during this time of great uncertainty. While COVID-19 is top of mind, pregnant women should also practice CMV prevention tips to reduce the risk of transmission of the most infectious cause of birth defects in the United States.

EHDI Conference Recap

Author: Amanda Devereaux The 2020 Early Hearing Detection & Intervention (EHDI) meeting was held in Kansas City, MO, March 8-March 10th. The goal of the annual EHDI Meeting is to enhance the implementation of comprehensive state-based Early Hearing Detection and Intervention (EHDI) programs, and there were several key observations relevant to our CMV community from this year's meeting.

Volunteer Spotlight: Cara Gluck

Meet Cara Gluck. Public health professional and CMV mom from Lawton, OK. Cara's passion and perspective combine to increase CMV awareness in her home state and beyond!

Lurie Children's Hospital: Improving Awareness and the Timely Diagnosis of cCMV in Illinois

Our goal is to be able to provide a rapid diagnosis for those newborns who fail their hearing screens in the newborn nursery, when the hearing loss is attributable to infection with CMV during pregnancy.  Recent research has revealed treatment options for those newborns found to have hearing loss from congenital CMV, to optimize hearing outcomes and neurodevelopment. 

The CMVirus Pledge

September is Newborn Screening Month. In April 2019, the National CMV Foundation and the CMV RUSP Nomination Team announced the submission of CMV for inclusion on the Recommended Uniform Screening Panel (RUSP).