Blog

Q&A with Mama Hu Hears

We had a chance to chat with Michelle Hu. Aud, Pediatric Audiologist. Michelle has turned her love for all things hearing and personal experience with hearing loss into an online presence for educating parents and professionals - Mama Hu Hears. Michelle shares her clinical perspective and experience with congenital CMV related hearing loss.

Update: cCMV Nomination for the Recommended Uniform Screening Panel (RUSP)

The most recent update about our nomination for congenital CMV (cCMV) for inclusion on the Recommended Uniform Screening Panel (RUSP) by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) by Megan Pesch, MD, MS, FAAP, President-Elect National CMV Foundation. 

Congenital CMV Evaluation and Treatment and the COVID-19 Pandemic

In efforts to help limit the spread of SARS-CoV2 and minimize the risk of COVID-19 to patients, providers and staff, many governing bodies are categorizing essential and non-essential clinical guidelines to help with prioritization and planning. While maintaining and adjusting safety procedures that work best for each institution, state agency, and community is paramount, neonatal cytomegalovirus (CMV) screening, evaluation and treatment should continue to be performed per routine institutional protocols and considered essential patient care.

Coronavirus (COVID-19) Statement

COVID-19, the novel coronavirus outbreak currently elevated to global pandemic status, is of particular concern for the elderly, immunocompromised, and those with underlying health issues. The National CMV Foundation's Scientific Advisory Committee is actively monitoring the situation in regards to its impact on children and pregnant women, as data continues to evolve.

The CDC Releases New CMV Materials

The Centers for Disease Control and Prevention (CDC) released two new resources for health care professionals about congenital CMV in June 2017, National CMV Awareness Month. The information sheets, produced and published by the National Center for Immunization and Respiratory Diseases (NCIRD), provide much needed information for healthcare providers who work with two distinct populations affected by congenital CMV—pregnant women and their newborns. 

Important information about CMV for OB/GYNs

​There is a prominent health threat in our nation that is slipping under the radar: CMV. With the help of OB/GYNs, we can raise awareness and empower pregnant women, protecting their babies through simple prevention methods and giving them options for treatment if they do contract this virus.

How family and friends can support loved ones affected by CMV

​There is a very old saying that goes, "It takes a village to raise a child." When that child has special needs, this is especially true. Family and friends are a critical part of life when you have a child with CMV, but sometimes it's hard to know what to do. National CMV can help you learn more - about CMV, about the special needs each child might face, and about what your family member or friend might need most right now.

Pregnant and diagnosed with CMV?

​If you have just recently been diagnosed with CMV, it can be an extremely confusing, difficult time--we've been there. Just trying to understand what the doctors are telling you can leave you feeling lost and alone sometimes. National CMV is here to help guide you as you begin this journey, providing information and resources to better understand what comes next.

New conception recommendations for Zika and CMV

The Centers for Disease Control and Prevention (CDC) has issued new recommendations for women hoping to get pregnant after possible exposure to Zika virus. Most people infected with Zika virus won’t even know that they have the disease because they won’t have symptoms. Like Zika virus, most women who contract cytomegalovirus (CMV) will not experience any symptoms and may not even know that they have been infected.