Blog

Volunteer Spotlight: Shelly Zappas

Meet Shelly Zappas, our Community Alliance Chair from Los Angeles, California. Shelly is a family nurse practitioner and currently, a professor and the program director for the MSN-FNP program at the University of Southern California. She has two children, one born with congenital CMV.

Volunteer Spotlight: Corey Clem

Meet Corey Clem, our Community Alliance Chair from New Home, Texas. Corey is an instructor at Texas Tech University and has daughter, Ellie, born with congenital CMV.

Perfect: A Journey of CMV, Love, and Resiliency

Author: Patty Cutshall

I wrote the book Perfect: A Journey of CMV, Love, and Resiliency, not only to celebrate what Brandon has done for me and others but to provide hope for those that are newly diagnosed and their caretakers and parents. I hope that this book, read aloud to your kiddo, will make you feel confident and empowered as their advocate and cheerleader. 

Parent Spotlight: Jessica Rachels

Author: Jessica Rachels My name is Jessica Rachels. I am from Idaho and I am a Christian, wife, mom, homemaker, caregiver to both my Dad and daughter who have disabilities, advocate for people with disabilities, and author of Natalie Bug: My Life With Cytomegalovirus.

Volunteer Spotlight: Andy Jones

Meet Andy Jones, our Community Alliance Chair from Alabama. Andy is a lawyer by day and when he's not working, he's advocating for CMV education in memory of his son, Ross, and enjoying nature with his wife and two daughters.

Volunteer Spotlight: Shayne Gaffney

Meet Shayne Gaffney, our Community Alliance Chair from New Hampshire. Shayne runs GC Coaching and is a cycling coach, and when he's not working, he's advocating for CMV screening in New England and hosting several National CMV podcasts! Shayne is father to two young children, his daughter born with congenital CMV.

Volunteer Spotlight: Lisa Eickel

Meet Lisa Eickel, our Community Alliance Chair from Virginia! Lisa is a busy mom to three boys and a speech language pathologist. 

Volunteer Spotlight: Samantha Isaacs

Meet Samantha Isaacs, our Community Alliance Chair from north Florida. Samantha is mom to four beautiful kiddos. Follow her blog to learn more about #HankStrong, Sunshine and Shattered Dreams!

Volunteer Spotlight: Megan Nix

Meet Megan Nix, our Community Alliance Chair from Denver, Colorado. Megan is mom to three girls and a nonfiction writer, we are lucky to have her in our corner!

Volunteer Spotlight: Erica Steadman

Meet Erica Steadman from Tinley Park, Illinois. Erica has three daughters and when she's not advocating for CMV, she's leading marketing efforts for American Sale Corporation.