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Blog

Board Member Spotlight: Megan Pesch, MD

Meet Dr. Megan Pesch. Dr. Pesch is a developmental and behavioral pediatrician at CS Mott Children's Hospital in Ann Arbor, MI, and she is mom to three daughters, her youngest born with congenital CMV.

Board Member Spotlight: Sallie Permar, MD, PhD

Meet Dr. Sallie Permar. Dr. Permar is a physician scientist focusing on the prevention and treatment of neonatal viral infections. She leads a research laboratory at Duke investigating immune protection against vertical transmission of neonatal viral pathogens, namely HIV and cytomegalovirus (CMV), using human cohorts and nonhuman primate models.

Volunteer Spotlight: Cara Gluck

Meet Cara Gluck. Public health professional and CMV mom from Lawton, OK. Cara's passion and perspective combine to increase CMV awareness in her home state and beyond!

Compete 4 CMV Spotlight: Matt Rowe

Meet Matt Rowe. Dad to CMV kiddo, Nadia, accomplished runner, and soon-to-be 7-time marathoner! We're proud he's racing for #CMVawareness at the NYC Marathon on 11/3!

Lurie Children's Hospital: Improving Awareness and the Timely Diagnosis of cCMV in Illinois

Our goal is to be able to provide a rapid diagnosis for those newborns who fail their hearing screens in the newborn nursery, when the hearing loss is attributable to infection with CMV during pregnancy.  Recent research has revealed treatment options for those newborns found to have hearing loss from congenital CMV, to optimize hearing outcomes and neurodevelopment. 

The CMVirus Pledge

September is Newborn Screening Month. In April 2019, the National CMV Foundation and the CMV RUSP Nomination Team announced the submission of CMV for inclusion on the Recommended Uniform Screening Panel (RUSP). 

CMVIRUS: Spread the word, not the virus

National CMV Foundation announces the launch of our new public health campaign: CMVIRUS – Spread the Word, Not the Virus.

Expecting Health: Increasing Awareness Through Partnerships, Platforms, and Influencers

Congratulations to the Expecting Health team, led by Natasha Bonhonne, on being one of our selected recipients for the 2019 Public Health Awareness Mini Grant!

Volunteer Spotlight: Amanda Devereaux

Meet Amanda Devereaux. Maternal child health nurse and CMV mom from Des Moines, Iowa. Amanda's passion and drive are helping to make great strides in her community and beyond! 

How to Pitch Your Family’s CMV Story to Media

Author: Becky Ericson There’s nothing better than a good story to spread a message. Stories are emotional, filled with context, and how we make sense of the world. And stories, incidentally, are the lifeblood of journalism. But for everyday people not working in media, reaching out to reporters pitching them on your personal experience or your kiddo’s story can be downright intimidating. How can you start from square one and break through the clutter?