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Volunteer Spotlight: Kim Hill

Meet Kim Hill. Kim, her husband Jason and their four children make their home in Raleigh, NC. Kim is a parent educator for the North Carolina Division of Public Health and board Secretary for UNC Children's Hospital. She's also a volunteer Chair of the CMV Community Alliance - North Carolina. No doubt, Kim keeps keeps busy! We're grateful that she took a bit of time to share a bit more about her family, as well as her work as an advocate and CMV parent.

Volunteer Spotlight: Rebekah Hall

Author: Rebekah Hall Meet Rebekah Hall. Rebekah is a doctor of clinical psychology, mother of 3, CMV advocate, and much more! We're excited to feature Rebekah in our volunteer spotlight during volunteer month. 

Top 5 Takeaways from CMV 2019

Before we dive into the key discussion points – one underlying theme was ever-present from our perspective – it was and continues to be deeply moving to see how many global professionals are devoting their lives to advancing congenital CMV research. Please know that we see you. And we appreciate you.

National CMV Foundation Nominates Congenital CMV for RUSP Newborn Screening

‚ÄčNational CMV Foundation and the CMV RUSP Nomination Team are excited to announce we have completed the submission of cytomegalovirus to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of 35 core conditions and 26 secondary conditions that all newborns in the US are recommended to be screened for.

2019 TCS New York City Marathon

Author: Kristel Jacobson Run the 2019 TCS New York City Marathon with Compete 4 CMV!

Board Member Spotlight: Zack Rigoni

Author: Zachary Rigoni Meet Zack Rigoni. Zack is an investment banker in NYC focused on upstream oil & gas companies, and he brings dynamic energy and a new perspective to the pursuit of achieving cCMV awareness in the United States. Zack is most happy when spending time with his family, including two young children. 

Compete 4 CMV Spotlight: Jeff Rich

Meet Jeff Rich. A longtime friend of founders, Kristen and John Spytek. Father of three. And, soon-to-be Compete 4 CMV - NYC Marathon finisher!

Board Member Spotlight: Albert Park

Author: Dr. Albert Park Meet Dr. Albert Park. Dr. Park is Chief of Pediatric Otolaryngology at the University of Utah and principle investigator for the ValEAR study. His focus is in pediatric hearing loss, identifying a great number of babies with congenital CMV. 

Compete 4 CMV Spotlight: Pete Zoob

Meet Pete Zoob. A longtime friend of founders, Kristen and John Spytek, and soon-to-be eight-time marathoner! We're grateful he's making #8 a Compete 4 CMV race.

What I Took Away from the CMV Public Health & Policy Conference

Author: Kristen H Spytek Our community of parents, advocates, early interventionists, state health employees, clinicians, researchers, scientists, and stakeholders, were well-represented in Burlington last week, and what was extremely encouraging to me, is that both individually and together, we all continue to operate on full cylinders at the very epicenter of what we’re each trying to ultimately do – save babies and prevent birth defects due to congenital CMV.