Blog

Expecting Health: Increasing Awareness Through Partnerships, Platforms, and Influencers

Congratulations to the Expecting Health team, led by Natasha Bonhonne, on being one of our selected recipients for the 2019 Public Health Awareness Mini Grant!

Volunteer Spotlight: Amanda Devereaux

Meet Amanda Devereaux. Maternal child health nurse and CMV mom from Des Moines, Iowa. Amanda's passion and drive are helping to make great strides in her community and beyond! 

How to Pitch Your Family’s CMV Story to Media

Author: Becky Ericson There’s nothing better than a good story to spread a message. Stories are emotional, filled with context, and how we make sense of the world. And stories, incidentally, are the lifeblood of journalism. But for everyday people not working in media, reaching out to reporters pitching them on your personal experience or your kiddo’s story can be downright intimidating. How can you start from square one and break through the clutter?

Volunteer Spotlight: Laura Sweet

Meet Laura Sweet. Laura is a CMV mom and member of the Maine CMV workgroup. When she's not spending time with her family, husband Joe and their two children, Henry and Jane - she's training to run with Compete 4 CMV in this year's NYC Marathon. We're grateful that she took a bit of time to share a bit more about her family, as well as her work as an advocate and CMV parent.

Volunteer Spotlight: Kim Hill

Meet Kim Hill. Kim, her husband Jason and their four children make their home in Raleigh, NC. Kim is a parent educator for the North Carolina Division of Public Health and board Secretary for UNC Children's Hospital. She's also a volunteer Chair of the CMV Community Alliance - North Carolina. No doubt, Kim keeps keeps busy! We're grateful that she took a bit of time to share a bit more about her family, as well as her work as an advocate and CMV parent.

Volunteer Spotlight: Rebekah Hall

Author: Rebekah Hall Meet Rebekah Hall. Rebekah is a doctor of clinical psychology, mother of 3, CMV advocate, and much more! We're excited to feature Rebekah in our volunteer spotlight during volunteer month. 

Top 5 Takeaways from CMV 2019

Before we dive into the key discussion points – one underlying theme was ever-present from our perspective – it was and continues to be deeply moving to see how many global professionals are devoting their lives to advancing congenital CMV research. Please know that we see you. And we appreciate you.

National CMV Foundation Nominates Congenital CMV for RUSP Newborn Screening

​National CMV Foundation and the CMV RUSP Nomination Team are excited to announce we have completed the submission of cytomegalovirus to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of 35 core conditions and 26 secondary conditions that all newborns in the US are recommended to be screened for.

2019 TCS New York City Marathon

Author: Kristel Jacobson Run the 2019 TCS New York City Marathon with Compete 4 CMV!

Board Member Spotlight: Zack Rigoni

Author: Zachary Rigoni Meet Zack Rigoni. Zack is an investment banker in NYC focused on upstream oil & gas companies, and he brings dynamic energy and a new perspective to the pursuit of achieving cCMV awareness in the United States. Zack is most happy when spending time with his family, including two young children.