Parent Stories

 Cameron - Arizona Image

Cameron - Arizona

I knew my second pregnancy would be difficult.  I went into preterm labor with my first son and sure enough, I also went into preterm labor with my second. I was put on strict bed rest at 25 weeks. I spent a lot of time on the internet researching problems associated with preterm babies born at 25 weeks, which included mental retardation, blindness, deafness, and cerebral palsy, to name a few. 

 Danny - Missouri Image

Danny - Missouri

On the day my first son celebrated his first birthday, I learned that he was also going to be a big brother. My husband and I were elated, and once we discovered that we were having another boy, the idea of brothers blossomed in my heart and mind. I was in love with the idea of two little boys racing around and wrestling and filling our home with laughter for years to come. 

 Bailey - Alaska Image

Bailey - Alaska

There are pregnancies that begin with happiness, eager anticipation and delight….this was one of them. My husband and I were ready and this being our first child we learned all we could, went to every doctor’s appointment and were on top of what we needed to know in order to welcome this child into the world. We chose the best, most respected doctor in Anchorage and felt like we were experts by the end of the 9 months.

 Dekker - California Image

Dekker - California

Three years ago my husband and I decided that we wanted another baby to add to my 10 year old daughter and our 2 year old son.  It only took one month and we were overjoyed when we found out we were expecting. Sadly it was short lived and a few weeks later we lost the baby. Luckily a couple months later we became pregnant again and were so excited when we made it past 12 weeks. We happily went to our 13 week ultrasound to look at our baby and hopefully find out if it was a boy or a girl. 

 Katelyn - Arizona Image

Katelyn - Arizona

My name is Katelyn Marie I was born November 6th, 2003. I have a big brother named Michael and became a big sister in December 2012; my baby brother’s name is James! On July 9th 2014 my daddy adopted my big brother and I! I love my family and our gaggle of pets! I love Mickey Mouse, sports, water, and spending time outside when the weather is cool.

 Leah - Tennessee Image

Leah - Tennessee

My story starts out like everyone’s. What, When, How, Where, and Why. What is Cytomegalovirus? When and where did I contract it? How did I get it? And the most daunting question, why? Why did I get it? Why does my child have it? Why did my doctors seem to think this was so rare and just couldn’t believe it and turned Leah and I into test subjects for months? Why does my child have to suffer because I didn’t know? Why was I not told the dangers of working in a daycare while pregnant?

 Liam - Virginia Image

Liam - Virginia

We were super excited to find out in 2006 that we were expecting our second child. To say that the pregnancy was a roller coaster ride is putting it mildly. When I was 11 weeks pregnant, I was carrying our older son Jamie down the stairs when I fell and broke my ankle. I had to get an x-ray and that worried me so much at that time. I was in a boot for 9 weeks. I finally got that worked out and it was time for our 20 week ultrasound. We were really hoping for a girl. When she said it's a boy I was a little bit disappointed. Boy did that seem selfish of me!

 Lily - Texas Image

Lily - Texas

My sweet Lily Belle came into this world at 2:49 PM, on September 6th, 2011, weighing just under five pounds. Upon her arrival, the nurses frantically took her away. Noticing that she was struggling to breathe, they called the NICU team and readied her for transport. I couldn't hold her, so instead, I held her tiny hand. Not even five minutes later, she was rushed into the NICU and, soon enough, I would be told of a virus that would change my whole world.

 Noah - New York Image

Noah - New York

On 10/11/2004, in the front seat of our car in route to the hospital, my son Noah was delivered by his dad. On site he looked like any other healthy 8 lb. newborn. His pediatrician, after consultation with an infectious disease doctor, decided to test Noah for Congenital CMV immediately after his birth. This decision was made because on Noah's routine 20 week sonogram an "echogenic bowel" (bright spots on his bowel) was seen. The doctor I was seeing that day decided to run a TORCH screen blood test. This TORCH screen showed that I had been exposed to a primary infection of the Cytomegalovirus.

 Reese - North Carolina Image

Reese - North Carolina

I started feeling sick about 10 or 11 weeks into my pregnancy. Everything could have been brushed off as typical symptoms of pregnancy (exhaustion, mild nausea, etc.), however I also had high fevers. I told my OB/GYN about the fevers, who then talked to a maternal fetal medicine specialist regarding what needed to be done, if anything. I am extremely thankful that conversation took place, and I'm absolutely convinced that it saved my daughter's life.