Parent Stories

 Tyler - Louisiana Image

Tyler - Louisiana

In the summer of 1995 of I was thrilled to find out that I was going to become a mom. My life was about to change in so many ways, not only was I expecting a child but I was about to graduate college and embark upon my career. I was nervous and excited anxiously awaiting my new life. On February 19, 1996, my life changed forever. As I was undergoing a routine non stress test and ultrasound, my obstetrician discovered that the baby was microcephalic and that I had a growth on my ovary that had taken over the whole left side of my pelvic/abdominal area. He stated that my baby had some abnormalities and could be born anencephalic and that he would be transferring me to another hospital that was more equipped to handle high risk deliveries. 

 Gabriela - California Image

Gabriela - California

My daughter Gabriela is probably the most amazing thing that has happened in my life, and without her I would definitely not be the person I am today. I found out I was pregnant in December, 2004. We had been trying for about 4 months to get pregnant, so when we got the positive result, we were thrilled! Things seemed fairly normal in the beginning. I had morning sickness, etc. just like any other pregnancy. But come mid January, I was SICK! 

 Silas - Texas Image

Silas - Texas

We were so excited when we found out that we were pregnant with our third child. At my regular OB check-up at 18 weeks pregnant, I decided to go ahead and do the 2nd trimester blood screening test. They took one vial of blood and said that they would call me with the results and I didn't think much more about it. The next week (week 19) they called to let me know that my screens came back at an "increased risk" for Down Syndrome and referred me to a genetic screening specialist. The specialist did a Level II Sonogram and immediately found several abnormalities: fluid in the abdomen, enlarged heart, bright intestines, abnormally small baby. We were shocked and had an amniocenteses that same day in hopes that we could find out what the issue was and be prepared to do everything possible to help our baby. 

 Sarah - South Carolina Image

Sarah - South Carolina

Hi. My name is Sarah and I was born with cmv just 22 years ago. I was born on Feb 26 1989 and like I said I was born with cmv. I had to stay in the hospital for 30 days in the nicu until I could fight the cmv and get stronger. The doctors said I won't make it to the age past 1 but I proved them wrong. Like all cmv fighters they have a medical additions to the virus. Mine has mulitiples. I have walking problems. I had to use a walker when I was a baby. Got off of it when I was only 3 I believe and now I got my left foot goes straight and my right one goes side ways.

 Brianna - Florida Image

Brianna - Florida

It was no surprise that we learned we were expecting on Thanksgiving Day. It was our son, Tyler’s 2nd birthday and a day to reflect on all the things we were thankful for, and that we were. Thankful to be expecting again. This was our third pregnancy. We lost our first baby at 12 weeks and shortly after we had our son Tyler who I carried full term and was a healthy baby boy. So needless to say the first twelve weeks of our third pregnancy, anxiety was high. 

 Liam - Virginia Image

Liam - Virginia

We were super excited to find out in 2006 that we were expecting our second child. To say that the pregnancy was a roller coaster ride is putting it mildly. When I was 11 weeks pregnant, I was carrying our older son Jamie down the stairs when I fell and broke my ankle. I had to get an x-ray and that worried me so much at that time. I was in a boot for 9 weeks. I finally got that worked out and it was time for our 20 week ultrasound. We were really hoping for a girl. When she said it's a boy I was a little bit disappointed. Boy did that seem selfish of me!

 Leah - Tennessee Image

Leah - Tennessee

My story starts out like everyone’s. What, When, How, Where, and Why. What is Cytomegalovirus? When and where did I contract it? How did I get it? And the most daunting question, why? Why did I get it? Why does my child have it? Why did my doctors seem to think this was so rare and just couldn’t believe it and turned Leah and I into test subjects for months? Why does my child have to suffer because I didn’t know? Why was I not told the dangers of working in a daycare while pregnant?

 Katelyn - Arizona Image

Katelyn - Arizona

My name is Katelyn Marie I was born November 6th, 2003. I have a big brother named Michael and became a big sister in December 2012; my baby brother’s name is James! On July 9th 2014 my daddy adopted my big brother and I! I love my family and our gaggle of pets! I love Mickey Mouse, sports, water, and spending time outside when the weather is cool.

 Danny - Missouri Image

Danny - Missouri

On the day my first son celebrated his first birthday, I learned that he was also going to be a big brother. My husband and I were elated, and once we discovered that we were having another boy, the idea of brothers blossomed in my heart and mind. I was in love with the idea of two little boys racing around and wrestling and filling our home with laughter for years to come. 

 Bailey - Alaska Image

Bailey - Alaska

There are pregnancies that begin with happiness, eager anticipation and delight….this was one of them. My husband and I were ready and this being our first child we learned all we could, went to every doctor’s appointment and were on top of what we needed to know in order to welcome this child into the world. We chose the best, most respected doctor in Anchorage and felt like we were experts by the end of the 9 months.