Parent Stories

 Kaley - Maryland Image

Kaley - Maryland

We first became concerned about our little Kaley at about 21 weeks gestation when she was diagnosed with IUGR. Otherwise, everything appeared to be fine, so we continued to go for follow-up scans, and it was always the same result. She was very small but otherwise fine. They did a TORCH panel eventually which showed elevated CMV antibodies but the timing of infection was uncertain, especially since I never got sick. The doctors didn't appear overly concerned since she didn't have any other typical CMV ultrasound findings, but they continued to monitor her. 

 Nolan - Oregon Image

Nolan - Oregon

His smile sets my soul on fire and exudes strength far beyond my comprehension. Nolan was born November 27, 2002. Nolan's entry into this world was silent. I remember after hours of labor, my heart sank as the nurses began to, "work" on him. After what seemed like an eternity, he let out a little cry. The doctor examined him, and gave the nurses the green light to wrap him up and place him on my chest. 

 Ashley - Michigan Image

Ashley - Michigan

I guess I don't really know where to start, so here we go...I was young. 17 to be exact. After finding out I was pregnant from my month long relationship, I was determined to persevere and face the challenge "head-on". 

 Emmitt - Ohio Image

Emmitt - Ohio

Hi, I'm Emmitt and I am 2.5 years old! I was born at 37 weeks gestation and very tiny, only weighing 4lbs 2oz. My mommy had a very normal pregnancy and never felt sick. The only abnormal finding while she was carrying me was upper normal ventricle size in my brain. They took me early because I stopped growing. Mommy and Daddy fell in love with me and my beautiful blue eyes. When I was 4 months old, my family noticed that I wasn't reaching for toys or tracking objects or people with my eyes and they were concerned. After multiple tests (vision screening, MRI, CT, lumbar puncture, blood work, ultrasound, urine analysis) it was concluded that I was born with congenital Cytomegalovirus. 

 Lillian - Texas Image

Lillian - Texas

On December 28, 2011, we welcomed our second daughter, Lillian Grace, into the world. She was a beautiful blond haired, blue-eyed baby, and everything was perfect as we took her home on New Year’s Eve. 

 Jayden - Colorado Image

Jayden - Colorado

I went into preterm labor and was sent to a high risk OB who found on an ultrasound severe brain damage to our baby. Jayden was born almost 2 months early, January 17th in 2008, after over 36 hours of labor. He weighed 3 lb 11 oz and was 15 and 1/4in tall. He was immediately taken to the NICU and was put through multiple tests. My husband and I found out that night that our son had cCMV (congenital CytoMegaloVirus). 

 Annabelle Grace - North Carolina Image

Annabelle Grace - North Carolina

‚ÄčOn December 22nd, 2015 I was 35 weeks pregnant and realized that I hadn’t felt my baby move in a few hours. She’d already been measuring small, and they were doing weekly non-stress tests to make sure the baby was ok. The doctors hadn’t seemed too concerned with her small size, just that it may be the difference between me carrying boys and girls.  I made it into my doctors office a little over an hour later and they did a non-stress test and an ultrasound to check on her.  She seemed to be doing ok, just a bit sluggish and the ultrasound showed that there wasn’t very good flow through the umbilical cord.  They decided to admit me to the hospital for overnight monitoring.

 Noah - New York Image

Noah - New York

On 10/11/2004, in the front seat of our car in route to the hospital, my son Noah was delivered by his dad. On site he looked like any other healthy 8 lb. newborn. His pediatrician, after consultation with an infectious disease doctor, decided to test Noah for Congenital CMV immediately after his birth. This decision was made because on Noah's routine 20 week sonogram an "echogenic bowel" (bright spots on his bowel) was seen. The doctor I was seeing that day decided to run a TORCH screen blood test. This TORCH screen showed that I had been exposed to a primary infection of the Cytomegalovirus.

 Gabriela - California Image

Gabriela - California

My daughter Gabriela is probably the most amazing thing that has happened in my life, and without her I would definitely not be the person I am today. I found out I was pregnant in December, 2004. We had been trying for about 4 months to get pregnant, so when we got the positive result, we were thrilled! Things seemed fairly normal in the beginning. I had morning sickness, etc. just like any other pregnancy. But come mid January, I was SICK! 

 Silas - Texas Image

Silas - Texas

We were so excited when we found out that we were pregnant with our third child. At my regular OB check-up at 18 weeks pregnant, I decided to go ahead and do the 2nd trimester blood screening test. They took one vial of blood and said that they would call me with the results and I didn't think much more about it. The next week (week 19) they called to let me know that my screens came back at an "increased risk" for Down Syndrome and referred me to a genetic screening specialist. The specialist did a Level II Sonogram and immediately found several abnormalities: fluid in the abdomen, enlarged heart, bright intestines, abnormally small baby.