Parent Stories

DJ - Pennsylvania

DJ was born 4 weeks early on December 7th, 2019. He was 4lbs 2 ounces and automatically went to the NICU because of his size. I knew something wasn’t right as soon as I laid eyes on him.

Caleb - Connecticut

He is a miracle. A literal miracle. I can’t even begin to put into words how overwhelmingly blessed I am. Being a special needs mom is something I am proud to be because it means I can connect with other moms who have been through something traumatic and I can try to help them find the silver lining.

Wynne - Pennsylvania

Although she was only here a short time, she was here for a reason. My family and I will continue to advocate on behalf of our sweet baby warrior. 

Paul - Tennessee

I am hopeful that somehow our story can help other families learn more about CMV and hopefully bring awareness to the importance of CMV awareness even before conception. 

Portia - Michigan

​Portia is stubborn, strong-willed and fiercely determined. It’s what gives her an edge in life.

Indya - Georgia

Our daughter, Indya, was born in 1988. Except for the cold I had towards the end of my first trimester, my pregnancy was normal, and we had no reason for concern beyond the typical worries of first-time parents. 

Leo - New York

This was our second pregnancy. It was a BOY! All was going according to plan. The 21-week ultrasound was scheduled and Karen went in very confident all was going to be okay. Turns out, it wasn't. 

Dorothea - New Jersey

This is Dorothea! We live in New Jersey. I was diagnosed with CMV within the first trimester of my pregnancy (8 weeks). Dorothea did contract the virus, but was born asymptomatic.

Logan - Massachusetts

Not a day goes by that we don’t think of and miss Logan. We will always wonder what could have been, had we known about congenital CMV and its prevention.

Nyah - Australia

This is our daughter Nyah, she is 5 months old and was born with CMV. I had no idea I contracted the virus when I was pregnant.
 
It was the most frightening time of our lives, her viral load was in the millions but for now she is happy and healthy. We have to monitor her hearing, of course, but we so far have been very lucky with her health.