Posted:
4/29/2024Category: advocacy, parent, screening
It is devastating to know that over a third of a century after Caroline was diagnosed
in utero and received live-saving and ability-saving treatment, cCMV prevention information is still not presented, babies are still not tested at birth when treatment could stop the progression of cCMV, and parents are still not being advised about antiviral and other treatments in a timely manner or any manner at all. I am hopeful that pending federal cCMV legislation will pass and cause a huge step forward.