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Parent Stories
Zachary - South Carolina
Posted:
8/27/2020
It has been almost 12 years since his death, I still think about him, talk about him, and share his story. I have had two more healthy children since then. All of my children know about their brother and we continue to celebrate his life.
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»
DJ - Pennsylvania
Posted:
5/12/2020
DJ was born 4 weeks early on December 7th, 2019. He was 4lbs 2 ounces and automatically went to the NICU because of his size. I knew something wasn’t right as soon as I laid eyes on him.
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»
Caleb - Connecticut
Posted:
10/7/2019
He is a miracle. A literal miracle. I can’t even begin to put into words how overwhelmingly blessed I am. Being a special needs mom is something I am proud to be because it means I can connect with other moms who have been through something traumatic and I can try to help them find the silver lining.
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»
Wynne - Pennsylvania
Posted:
8/5/2019
Although she was only here a short time, she was here for a reason. My family and I will continue to advocate on behalf of our sweet baby warrior.
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»
Paul - Tennessee
Posted:
8/1/2019
I am hopeful that somehow our story can help other families learn more about CMV and hopefully bring awareness to the importance of CMV awareness
even before
conception.
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»
Portia - Michigan
Posted:
4/30/2019
​Portia is stubborn, strong-willed and fiercely determined. It’s what gives her an edge in life.
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»
Indya - Georgia
Posted:
4/15/2019
Our daughter, Indya, was born in 1988. Except for the cold I had towards the end of my first trimester, my pregnancy was normal, and we had no reason for concern beyond the typical worries of first-time parents.
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»
Leo - New York
Posted:
12/14/2018
This was our second pregnancy. It was a BOY! All was going according to plan. The 21-week ultrasound was scheduled and Karen went in very confident all was going to be okay. Turns out, it wasn't.
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»
Dorothea - New Jersey
Posted:
9/4/2018
This is Dorothea! We live in New Jersey. I was diagnosed with CMV within the first trimester of my pregnancy (8 weeks). Dorothea did contract the virus, but was born asymptomatic.
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»
Logan - Massachusetts
Posted:
7/23/2018
Not a day goes by that we don’t think of and miss Logan. We will always wonder what could have been, had we known about congenital CMV and its prevention.
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»
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