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National CMV recently teamed up with GSW, an award-winning, full-service healthcare communications agency, to create a compelling public health campaign and bring some of our recent advocacy work to life. 

How to Pitch Your Family’s CMV Story to Media

Author: Becky Ericson There’s nothing better than a good story to spread a message. Stories are emotional, filled with context, and how we make sense of the world. And stories, incidentally, are the lifeblood of journalism. But for everyday people not working in media, reaching out to reporters pitching them on your personal experience or your kiddo’s story can be downright intimidating. How can you start from square one and break through the clutter?

Volunteer Spotlight: Laura Sweet

Meet Laura Sweet. Laura is a CMV mom and member of the Maine CMV workgroup. When she's not spending time with her family, husband Joe and their two children, Henry and Jane - she's training to run with Compete 4 CMV in this year's NYC Marathon. We're grateful that she took a bit of time to share a bit more about her family, as well as her work as an advocate and CMV parent.

Volunteer Spotlight: Kim Hill

Meet Kim Hill. Kim, her husband Jason and their four children make their home in Raleigh, NC. Kim is a parent educator for the North Carolina Division of Public Health and board Secretary for UNC Children's Hospital. She's also a volunteer Chair of the CMV Community Alliance - North Carolina. No doubt, Kim keeps keeps busy! We're grateful that she took a bit of time to share a bit more about her family, as well as her work as an advocate and CMV parent.

Volunteer Spotlight: Rebekah Hall

Author: Rebekah Hall Meet Rebekah Hall. Rebekah is a doctor of clinical psychology, mother of 3, CMV advocate, and much more! We're excited to feature Rebekah in our volunteer spotlight during volunteer month. 

Top 5 Takeaways from CMV 2019

Before we dive into the key discussion points – one underlying theme was ever-present from our perspective – it was and continues to be deeply moving to see how many global professionals are devoting their lives to advancing congenital CMV research. Please know that we see you. And we appreciate you.

National CMV Foundation Nominates Congenital CMV for RUSP Newborn Screening

​National CMV Foundation and the CMV RUSP Nomination Team are excited to announce we have completed the submission of cytomegalovirus to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of 35 core conditions and 26 secondary conditions that all newborns in the US are recommended to be screened for.

Raising Awareness of Congenital CMV in New Jersey

Meet 2018 Public Health Awareness Mini Grant Recipients Allison Goldschlag-Reinking and Laurie Navin of The Central Jersey Family Health Consortium, and learn more about their project to implement a comprehensive educational program about congenital CMV in their region.

What I Took Away from the CMV Public Health & Policy Conference

Author: Kristen H Spytek Our community of parents, advocates, early interventionists, state health employees, clinicians, researchers, scientists, and stakeholders, were well-represented in Burlington last week, and what was extremely encouraging to me, is that both individually and together, we all continue to operate on full cylinders at the very epicenter of what we’re each trying to ultimately do – save babies and prevent birth defects due to congenital CMV.

Raising Awareness of CMV in Arizona

Meet 2018 Public Health Awareness Mini Grant Recipient Melissa Selbt, MPH, Executive Director of The EAR Foundation of Arizona, and learn more about her project to educate and evaluate CMV policy within her state.