Blog

Late-Onset Hearing Loss Awareness

Author: Diana Hanson, MS CCC-A Late Onset Hearing Loss (LOHL) is hearing loss that follows a passed newborn hearing screening up until age 5-6 years. LOHL Awareness Week was established in May 2021 to shine a spotlight on a population of young children who are often undiagnosed until later in childhood.

Volunteer Spotlight: Shelly Zappas

Meet Shelly Zappas, our Community Alliance Chair from Los Angeles, California. Shelly is a family nurse practitioner and currently, a professor and the program director for the MSN-FNP program at the University of Southern California. She has two children, one born with congenital CMV.

Volunteer Spotlight: Corey Clem

Meet Corey Clem, our Community Alliance Chair from New Home, Texas. Corey is an instructor at Texas Tech University and has daughter, Ellie, born with congenital CMV.

Perfect: A Journey of CMV, Love, and Resiliency

Author: Patty Cutshall

I wrote the book Perfect: A Journey of CMV, Love, and Resiliency, not only to celebrate what Brandon has done for me and others but to provide hope for those that are newly diagnosed and their caretakers and parents. I hope that this book, read aloud to your kiddo, will make you feel confident and empowered as their advocate and cheerleader. 

Parent Spotlight: Jessica Rachels

Author: Jessica Rachels My name is Jessica Rachels. I am from Idaho and I am a Christian, wife, mom, homemaker, caregiver to both my Dad and daughter who have disabilities, advocate for people with disabilities, and author of Natalie Bug: My Life With Cytomegalovirus.

Volunteer Spotlight: Andy Jones

Meet Andy Jones, our Community Alliance Chair from Alabama. Andy is a lawyer by day and when he's not working, he's advocating for CMV education in memory of his son, Ross, and enjoying nature with his wife and two daughters.

Recommended Uniform (Newborn) Screening Panel (RUSP) Update

Author: Dr. Megan Pesch In the fall of 2018, the National CMV Foundation formed a sub-committee including CMV parents, researchers and public health experts, to create a nomination package. The shell of the application was submitted, however additional data was requested by the Committee. Read more to learn about our application's status.

Volunteer Spotlight: Shayne Gaffney

Meet Shayne Gaffney, our Community Alliance Chair from New Hampshire. Shayne runs GC Coaching and is a cycling coach, and when he's not working, he's advocating for CMV screening in New England and hosting several National CMV podcasts! Shayne is father to two young children, his daughter born with congenital CMV.

Together We Stand, United We March On

We are so proud of what we've collectively built over the years, and we want to continue to strengthen and expand this work. As the African Proverb states, "If you want to go quickly, go alone. If you want to go far, go together."

Volunteer Spotlight: Lisa Eickel

Meet Lisa Eickel, our Community Alliance Chair from Virginia! Lisa is a busy mom to three boys and a speech language pathologist.