Blog

Recommended Uniform (Newborn) Screening Panel (RUSP) Update

Author: Dr. Megan Pesch In the fall of 2018, the National CMV Foundation formed a sub-committee including CMV parents, researchers and public health experts, to create a nomination package. The shell of the application was submitted, however additional data was requested by the Committee. Read more to learn about our application's status.

Volunteer Spotlight: Shayne Gaffney

Meet Shayne Gaffney, our Community Alliance Chair from New Hampshire. Shayne runs GC Coaching and is a cycling coach, and when he's not working, he's advocating for CMV screening in New England and hosting several National CMV podcasts! Shayne is father to two young children, his daughter born with congenital CMV.

Together We Stand, United We March On

We are so proud of what we've collectively built over the years, and we want to continue to strengthen and expand this work. As the African Proverb states, "If you want to go quickly, go alone. If you want to go far, go together."

Volunteer Spotlight: Lisa Eickel

Meet Lisa Eickel, our Community Alliance Chair from Virginia! Lisa is a busy mom to three boys and a speech language pathologist. 

Volunteer Spotlight: Samantha Isaacs

Meet Samantha Isaacs, our Community Alliance Chair from north Florida. Samantha is mom to four beautiful kiddos. Follow her blog to learn more about #HankStrong, Sunshine and Shattered Dreams!

Volunteer Spotlight: Megan Nix

Meet Megan Nix, our Community Alliance Chair from Denver, Colorado. Megan is mom to three girls and a nonfiction writer, we are lucky to have her in our corner!

Volunteer Spotlight: Erica Steadman

Meet Erica Steadman from Tinley Park, Illinois. Erica has three daughters and when she's not advocating for CMV, she's leading marketing efforts for American Sale Corporation.

Volunteer Spotlight: Ashley Maes

Meet Ashley Maes from Clovis, California. Ashley advocates for CMV in honor of her daughter, Ila.

Volunteer Spotlight: Lindsay Lawless

Meet Lindsay Lawless from Abington, Pennsylvania. Lindsay advocates for CMV in memory of her daughter, Wynne, and in honor of her two other children.

Volunteer Spotlight: Karri Grecco

Meet Karri Grecco. Karri is a full-time mother of three from Bel Air, Maryland. Her decade+ experience in caring for a child with CMV and proximity to DC make Karri a terrific advocate for the community!